Three months ago, I did a thirty day challenge of writing daily blog posts about my experience using neuroplastic techniques to come out of persistent pain. At the time I had no definable cause for the pain. In the subsequent two months I’ve had scans that confirm whiplash-associated arthritis where my head joins my spine.
Despite the lack of updates in that time, I have mostly kept up the pace with visualisation. My routine is a thirty minute sit (visualisation not meditation) before anything else each morning, another sit after breakfast and one more before bed. These are scaffolding. They keep the imagery fresh enough in my mind that I can recall it as needed while going about my daily tasks for the rest of the day.
Yes, the pain spikes still happen. I still have damage to my neck. I use a subjective scale of pain from one to ten, one being pain free and ten being dropped in boiling oil. And the pain spikes are still at the 6/10 that they were before starting the visualisation.
(Of course, comparing levels of pain is where a subjective scale becomes unreliable but it has to suffice, given that pain is a perception. There can be no objective measure of pain.)
That’s where the similarities end, however. In other ways, the most astounding changes have occurred:
- I can get the pain to stop. If I’m diligent and prepared to prioritise visualisation whenever a pain spike hits (any time of day or night, even if this means sacrificing the task or timeline I’m running with) then I can get rid of it. There are exceptions, but generally the pain recedes. After a ten minute break, I can carry on with my day. (Major flare ups are a whole ‘nother ball game that still require me to drop everything for a day or two. I have other tactics in place to avoid them, see below).
- Two-hours pain free is now a daily occurrence. I can now be pretty much guaranteed of a period in the afternoon where I can work, move around, talk etc without needing to stop and visualise or take breaks. It’s like I’m back to my old self for those couple of hours.
Note that both these effects are occurring while completely free of painkillers 🙂 No paracetamol (aka acetaminophen for my US readers). No ibuprofen. No codeine and definitely no tramadol.
To me, this is worth any amount of slow-down, drop-everything-and-visualise type behaviour that I need to undertake for the rest of the day in order to attain the pain free states.
That’s the good news.
Major Pain Triggers
Six months ago I had to limit my activities to avoid what I’m calling “major flare ups”. Usually lasting two days, but sometimes up to four, even visualisation brings no relief during these periods. Restorative yoga and sleep is about the only thing for me.
Those limitations persist — that’s the bad news. Unfortunately for me (and my erstwhile yoga students) they include actions that are commonplace in many asana. Downward dog or plank pose shoot whole body pain and headache into my eyes, confusion, nausea, visual field like a broken mirror, tiredness. Shortness of breath. Ringing in my ears. So I’m still not back on the regular teaching circuit. I don’t know if I ever will be, now that we’ve discovered the arthritis.
My physio gave me an ingenious set of exercises. Attach a laser pointer to your glasses frame, and use it to draw around door frames etc from a distance of three metres. This is to retrain the tiny muscles at the base of your skull. If you have a laser pointer, try it! But they’re no good for me. It’s great training for those muscles, but the actions flare up the actual joint itself so I’m in bed the next day. For a couple days.
I’ve also had to limit or eliminate heavy lifting and hammering (so no DIY for me), computer use for more than half an hour without a break to move around, driving for long periods. Even just being in a hurry can start me on a spiral that can lead a strong burst of long-lived pain. So I’ve had to slow down my life a lot just in general.
Speaking loosely, I wouldn’t call it “normal life” yet, but it’s heading that way. I can approach each day with more optimism, just knowing that each afternoon I will get a period of relief. And knowing that, if I am sensible and realistic about my activities through the day, then I’ll be able to head off pain spikes as they occur. It feels manageable.
It’s tricky to remain realistic with those activity goals after so long being on tenterhooks. Staying realistic without stifling the optimism — that’s the next phase of this recovery journey.
I’m fumbling my way a bit. In the past I relied on my gung-ho attitude to get me through just about any confusing situation (“fake it till you make it”). That won’t cut it here. I need to develop the patience, persistence and self-awareness to chip away at tasks without going into hyperfocus mode on them. An hour here, an hour there and plenty of walks and breaks in between.
If you have any tips to share with me about realistic recovery please share them in the comments. I’m particularly looking to learn more about my warning signs when I’ve overdone it, ways to structure a day so I can get the most out of them while remaining true to my capacity. Useful activity worksheets, for people in recovery. Forums or blogs to follow … I’ll collect any suggestions, plus what I learn from my own experience and research, and put them into a future post to follow soon.
Don’t forget to comment! 🙂